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Events

Screenings, talks, podcasts and news from the Duke ALS Clinic.

Jump to year:20262025202420232022

224 events

Upcoming 4 events

NOV152026
UpcomingSunday · 1:30 pm

Free screening of “Stitching Strength” at Park Road Baptist Church in Charlotte

Details
NOV192026
UpcomingThursday

Stitching Strength to screen in Grand Rapids, MI

Event Details
DEC142026
UpcomingMonday

Duke ALS team to lead a NEALS webinar, updating the community on our exciting microbiome work

Details
JAN32027
UpcomingSunday

Stitching Strength to screen in Dallas, TX

Details

2026

NOV22026
Past eventMonday · 5:00 pm

Stitching Strength to screen at Duke’s Trent Center

Register to attend free
OCT242026
Past eventSaturday · 6:30 pm

Reynolds Theater to screen “Stitching Strength” at 6:30pm.

Details and tickets
OCT222026
Past eventThursday · 6:30 pm

“Stitching Strength” community screening in Greensboro

OCT12026
Past eventThursday · 7:00 pm

Compassionate Care ALS hosted a special screening of “Stitching Strength” at the historic Cape Cinema at 7pm.

Details
SEP172026
Past eventThursday · 6:00 pm

Bedlack was the keynote speaker at the Joe Martin ALS Foundation’s “Live Every Day” Dinner in Charlotte, NC.

Learn more
SEP10–112026
Past eventThursday – Friday

Dr. Bedlack screened “Stitching Strength” and spoke about hope at separate events in Minnesota

SEP22026
Past eventPodcastWednesday

New ALSUntangled podcast on Pyridostigmine just dropped.

You can listen for free
SEP22026
Past eventWednesday

Demetre Jeweler’s is now selling a very special watch, with profits going to support our research on the microbiome in ALS Progression.

Pre-Order to benefit ALS Research

Learn more
AUG252026
Past eventTuesday

Dr. Bedlack gave a platform presentation entitled “Hope: An Underutilized Treatment” at the ALS Nexus Meeting in Orlando Florida.

AUG232026
Past eventSunday · 2:00 pm

Taste of Hope event in Raleigh to feature screening of “Stitching Strength”, question and answer session with Dr. Bedlack.

Tickets available
AUG112026
Past eventPodcastTuesday

New ALSUntangled podcast on Alpha Lipoic Acid just dropped

You can listen free
JUL302026
Past eventVideoThursday · 12:00 pm

Dr. Bedlack presented a talk entitled “Motor Neuron Disease: Perspectives, Progress and Positivity” for MND New Zealand.

If you missed the live presentation, you can now watch the recorded talk
JUL242026
Past eventFriday · 7:00 pm

“Stitching Strength” played to a sold out and very supportive crowd in Putney VT.

You can see a short Instagram reel about it
JUL202026
Past eventMonday

Dr. Bedlack attended “Aces for ALS”, a golf event which raised over $200,000 for ALS Research at Duke.

You can see the highlights
JUL192026
Past eventSunday

Dr. Bedlack will wear a special shirt when he presents at ALS Nexus next month.

You can see it and read about the story behind it
JUL162026
Past eventThursday · 12:00 pm

Dr. Bedlack presented the Grand Rounds lecture, “Things I’ve Learned About Hope,” at the University of Tennessee, Knoxville.

A recording of the Grand Rounds talk is available to watch
JUL102026
Past eventFriday · 5:00 pm

Duke team will attend “Hope Never Goes Out of Style” event in Indianapolis Indiana.

Details in attached flyer

Learn more
JUN172026
Past eventWednesday · 3:30 pm

“Stitching Strength” documentary short film screened at University of Colorado.

JUN32026
Past eventPodcastWednesday

New CreATe Podcast just dropped, highlighting ALSUntangled review of PONS device

Listen to the episode
JUN22026
Past eventTuesday

Duke ALS Team honored “Lou Gehrig Day” with this fun Instagram reel

Learn more
JUN12026
Past eventVideoMonday

Bedlack featured on ALS Matters podcast, talks about the things he has learned from people living with ALS, and how these stimulated the creation of ALSUntangled and ALS Reversals research.

You can watch it free
JUN12026
Past eventMonday – Monday

Applications now open for 2026 Clearwater Clinical Research Learning Institute.

Apply now to become a Research Ambassador! Details
MAY312026
Past eventVideoSunday

Bedlack presented an overview of ALSUntangled for ALS Quebec.

You can watch it free
MAY152026
Past eventPodcastFriday

New ALSUntangled Podcast on ISRIB just dropped.

You can listen for free
MAY142026
Past eventThursday

To commemorate ALS Awareness Month, Dr. Bedlack’s is posting daily on Instagram showing 1 hopeful thing, wearing 1 outfit that brings him joy.

You can follow along on Instagram @stitchingstrength

Learn more
MAY52026
Past eventTuesday · 5:00 pm

“Stitching Strength” screened in Washington DC at IAMALS Community Gathering and Awareness Event.

APR252026
Past eventSaturday · 9:00 am

Dr. Bedlack spoke about Hope and screen “Stitching Strength” in Bonn Germany.

Details and QR code for registration in attached poster.

Learn more
APR182026
Past eventSaturday

Dr. Bedlack presented his findings on ALS Outliers at ALS Family Day in Belgium.

Details
APR152026
Past eventWednesday · 11:30 am

April Bedlack spoke on the power of hope at the Joe Martin ALS Foundation Luncheon in Greensboro NC.

Details
APR72026
Past eventTuesday · 6:00 pm

Special event in Boone

Come out and hear inspiring stories from people living with ALS, get updates on research, see the award-winning documentary short film “Stitching Strength” and root for contestants in the 3-legged race! Details
MAR292026
Past eventSunday · 3:00 pm

“Stitching Strength” screened at University of Southern Indiana.

Learn more
MAR272026
Past eventFriday

Eitelojorg Museum Exhibit “Cowboy Couture” opens, features Dr. Bedlack’s “Fashionably Fighting ALS” suit.

This was a most unusual way to raise awareness of ALS!

Learn more
MAR272026
Past eventFriday · 10:00 am

Dr. Bedlack was part of “Living Well with ALS” in Indianapolis.

He speaked about Hope in ALS and screen “Stitching Strength.”

Learn more
MAR252026
Past eventWednesday · 6:00 pm

“Stitching Strength” screened in Wheaton IL.

Learn more
MAR172026
Past eventTuesday · 7:30 pm

“Stitching Strength” screened at the Ampersand Film Festival.

 Thanks for all who attended!

MAR112026
Past eventWednesday

New ALSUntangled review on Clenbuterol just dropped

You can read it free
MAR42026
Past eventWednesday

New ALSUntangled review on NAC just dropped.

You can read it free
FEB252026
Past eventWednesday

Dr. Bedlack was senior author on a new paper examining the effects of climate change on brain health and making suggestions for mitigating these.

You can read it free
FEB72026
Past eventSaturday

Dr. Bedlack partnered with Miss Alabama to “stomp out ALS” at University of Alabama Birmingham!

 The popular event featured custom sneakers, a screening of “Stitching Strength” and a question and answer session 

FEB12026
Past eventSunday

“Stitching Strength” kicked off the Argyle Film Festival over the weekend.

It was an honor to be part of such a wonderful collection of films, each with a NC connection. 

Learn more
JAN282026
Past eventWednesday

Dr. Bedlack’s work was featured in Willam & Mary Alumni Magazine.

You can read the article
JAN52026
Past eventMonday

Stitching Strength, the documentary short film about Dr. Bedlack’s work, has just been accepted into the Argyle Film Festival and will screen on Friday January 30 at the Varsity Theater in Chapel Hill NC

Tickets can be purchased

2025

DEC152025
Past eventMonday

We just finished our most productive year ever.

We could not have done all this without your support!  Happy Holidays and can’t wait to see where we go together in 2026. 

You can read about it
DEC102025
Past eventPodcastWednesday

New ALSUntangled Podcast on Wahl’s protocol

You can listen free
NOV172025
Past eventPodcastMonday

New ALSUntangled podcast on psilocybin just dropped.

You can listen to them free
NOV102025
Past eventMonday

Duke participates in Catfish Classic to raise awareness and funds for ALSUnited.

NOV72025
Past eventFriday

ABC 11 features Dr. Bedlack’s unique approach to fashion & hope, and the “Stitching Strength” movie about it.

You can see this story
NOV62025
Past eventThursday

New ALSUntangled review on pyridostigmine just dropped

You can read it free
OCT232025
Past eventVideoThursday

Dr. Bedlack’s recent “Everything ALS” talk on outliers (what he is learning from very slow progressing patients and ALS reversals) is now available on YouTube.

You can watch it free
OCT202025
Past eventPodcastMonday

New ALSUntangled podcast on Ashwagandha just dropped.

You can listen to it free
OCT202025
Past eventMonday

“Stitching Strength” movie wins another award!

This time it was the “Kind Fashion Film Award” at London Fashion Film Festival

OCT102025
Past eventFriday

Duke team attends NEALS Meeting in Clearwater, presents 6 posters

Abstracts from these and the many other great presentations are available
OCT52025
Past eventSunday · 5:30 pm

“Stitching Strength” documentary to screen at Seattle International Fashion Film Festival at 5:30pm

Tickets available
OCT32025
Past eventFriday

Dr. Bedlack’s work was highlighted in an article by the Assembly.

You can read it free
SEP272025
Past eventSaturday

Racing for ALS event raises money for ALS Research at Duke and ALS TDI

Learn more
SEP172025
Past eventWednesday

Bedlack partners with NC State Professor Sam Pearce and her students to help design clothing that is both stylish and adaptive.

You can read more about this
SEP132025
Past eventSaturday

Duke team part of new peer-reviewed publication which adds support for IGFBP7 as a therapeutic target in ALS.

This is the first target that came out of the “ALS Reversals” research!

You can read it free
SEP42025
Past eventThursday

Duke Team has 6 abstracts accepted for Northeast ALS Consortium Meeting next month!

This is a new record for us and we could not be more excited about the research we are involved in right now.  We will post more details and our presentations here as they become available.

AUG272025
Past eventWednesday

Duke and UNC teams collaborated on this new research, just published as a pre-print

It identifies patterns of immune dysregulation that may determine the speed of ALS progression https://pmc.ncbi.nlm.nih.gov/articles/PMC12407898/

Learn more
AUG20–222025
Past eventWednesday – Friday

New community showings of Stitching Strength in Apex NC and North Myrtle Beach SC.

AUG72025
Past eventThursday

WUNC story just dropped on Hope Boosting in the Duke ALS Clinic.

You can read it free
AUG42025
Past eventMonday

New ALSUntangled review on ISRIB just dropped

You can read it free
JUL82025
Past eventTuesday

Showcase magazine just published a cover story highlighting Dr. Bedlack’s use of fashion and hope.

You can read it
JUN62025
Past eventFriday

“Stitching Strength” movie website is now live!

Here you can learn more about the film, see where it is scheduled to show next, and request your own community screening
JUN62025
Past eventFriday · 6:00 pm

“Stitching Strength” community movie screening will occur in Shipyard Park, Mount Pleasant SC at 6pm.

MAY282025
Past eventWednesday · 6:30 pm

Dr. Bedlack will be part of a Roon panel entitled You Deserve to Know: a Conversation on Treatments, Trials, and Truths for the ALS Community.

You can register to participate for free
MAY262025
Past eventMonday · 7:30 pm

“Stitching Strength” movie will screen at Glass Jug Beer Lab for the Durham community.

MAY242025
Past eventSaturday

New ALSUntangled review on Alpha-Lipoic Acid just published.

You can read it for free
MAY212025
Past eventWednesday · 6:00 pm

“Stitching Strength” movie screened at Duke Medical School for the Duke community.

MAY172025
Past eventSaturday

Duke ALS Team attended a celebration of music and arts called ALSapalooza in Greensboro NC. Funds raised benefitted ALSUnited NC Chapter

MAY12–132025
Past eventMonday – Tuesday

Two Movies in Nashville! On May 12, the “Stitching Strength” movie (which details Dr. Bedlack’s efforts to employ creativity and fashion to boost hope in people living with ALS) was screened for the community. The following night, the Grammy’s Family Matters movie about John Driskell Hopkins premiered to a star-studded audience.

You can read more
MAY92025
Past eventFriday

Dr. Bedlack participated in the IAMALS Summit in Washington DC

MAY2–42025
Past eventFriday – Sunday · 8:00 am

APR302025
Past eventWednesday

Raleigh Magazine article published, describing Dr. Bedlack’s collaboration with Sam Pearce and the NC State Fashion School

Learn more
APR262025
Past eventSaturday

Duke ALS Team participated in the Triangle Walk to Defeat ALS

APR182025
Past eventVideoFriday

Stitching Strength” early preview was held in Charlottesville, VA. Reviews were very positive! More showings being planned around the country.

New shows posted on Instagram @stitchingstrengthYou can see the trailer for this film
APR62025
Past eventSunday

Can fashion be medicine? Dr. Bedlack was part of a thought-provoking and fun panel that explored this question.

APR22025
Past eventWednesday · 5:00 pm

and all are invited to join her. You can register free HERE:

Learn more
APR22025
Past eventWednesday

Dr. Bedlack recently led a new webinar called “Stitching Strength: Things I Have Learned about Hope, and How I am Trying to Weave These Into My Practice”.

You can watch it free
MAR142025
Past eventFriday

ALSUntangled review of Zinc as an ALS treatment just dropped.

You can read it free
FEB182025
Past eventTuesday

Duke team helped author new publication summarizing results of the Zilucoplan trial

Learn more
FEB132025
Past eventThursday

Dr. Bedlack walked the runway and spoke about hope at “Hearts on a Sleeve” Fashion Show for ALS New Mexico

FEB102025
Past eventMonday

NPR’s Due South interviews Holley Broughton, Samuel Pearce and Dr. Bedlack about hope, individuality, and fashion.

You can listen for free
FEB52025
Past eventWednesday

Dr. Bedlack published a letter to the editor of Brain on the dangers of taking away options and hope.

You can read it
FEB12025
Past eventSaturday

Duke ALS team part of a new Neurology paper looking at the cost of delivering high quality ALS care.

You can read it
JAN292025
Past eventWednesday

Duke ALS team participates in Drive Out ALS to raise awareness and funds

JAN272025
Past eventMonday

Dr. Bedlack was part of a team that published an evaluation of a new way to measure ALS on a video visit.

You can find it
JAN202025
Past eventMonday

“I’m Dying to Tell You” podcast interviews Dr. Bedlack about creativity, hope, and ALS reversals.

You can listen
JAN142025
Past eventTuesday

Bedlack authored a new editorial on the importance of Hope in ALS.

You can find it
JAN132025
Past eventMonday

New Axios article details collaboration between Dr. Bedlack, people living with ALS, and NC State Fashion School to create clothing that is both stylish and adaptive.

You can read more about it
JAN32025
Past eventPodcastFriday

New podcast on ALS reversals and IGFBP7 just dropped.

You can listen for free
JAN12025
Past eventWednesday

Wrapping up 2024 and looking forward to 2025 “thank you” letter

Learn more

2024

DEC242024
Past eventTuesday

New ALSUntangled review on Psilocybin just published.

You can read it for free
DEC2–82024
Past eventMonday – Sunday

Dr. Bedlack joined 1200 colleagues from all over the world at the International Symposium on ALS/MND in Montreal Canada this week. Many hopeful talks and posters were presented.

Our field is poised to have a HUGE 2025!

NOV252024
Past eventVideoMonday

New Teaser Trailer for “Stitching Strength documentary just dropped.

You can watch it
NOV212024
Past eventThursday

New Raffle from Red Right Return is now open

Learn more
NOV142024
Past eventVideoThursday

Dr. Bedlack gave a talk called “Stitching Strength: Things I have Learned about Hope, and How I am Trying to Weave These Into My Practice

You can watch a recording
NOV62024
Past eventWednesday

Drs. Bedlack and Li just published a new review on the current most promising alternative and off label ALS treatments.

You can read it free
NOV62024
Past eventWednesday · 3:00 pm

Dr. Bedlack will join Dr. Fernando Viera to present their latest findings with regard to IGFBP7 in ALS.

You can register to watch it free
NOV22024
Past eventPodcastSaturday

New ALSUntangled Podcast on Lion’s Mane now available.

You can listen for free
OCT112024
Past eventFriday

October 11, 2024-Duke Team Participates in Golf4ALS to raise awareness and funds for research.

OCT92024
Past eventWednesday

New ALSUntangled review on the WAHLS Protocol just published.

You can read if for free
OCT12024
Past eventPodcastTuesday

New ALSUntangled podcast on “Insulin” as an ALS treatment now available.

You can listen for free
SEP282024
Past eventSaturday

Over the weekend, we participated in “Fairways for Life” in Indianapolis IN, and “Racing for ALS” in Alton VA.

These events honored the memory of people who lived with ALS, and they raised more than $100,000 for our Duke ALS Research Program

SEP202024
Past eventFriday

We are grateful to have partnered with the Packard Center at Johns Hopkins to host the 31st ALS Clinical Research Learning Institute.

Congratulations to the 20 new graduates who are now Research Ambassadors, empowered to be even more effective research partners.

SEP142024
Past eventSaturday

We had a blast participating in Hop On A Cure’s Harmony for Hope in Atlanta Georgia.

The event raised awareness and over $1 million for ALS research.  Duke received a generous donation of $50,000 for our microbiome research and Dr. Bedlack received the first ever AMP Award 

AUG232024
Past eventFriday

Stan Hustad interviews Dr. Bedlack for “Interesting Ideas” podcast

You can listen to it
AUG132024
Past eventTuesday

Dr. Bedlack receives inaugural “Accelerating Miracle Progress” Award from Hop On A Cure

Details
JUL302024
Past eventTuesday

Duke team publishes first-ever potential explanation for ALS Reversals: mutation in a gene that controls a protein called IGFBP7.

You can read the paper for free
JUL242024
Past eventWednesday · 8:00 am

Dr. Bedlack presented at Duke Neurology Grand Rounds.

His talk entitled “Hope in ALS, Things I’ve Learned (and Want to Learn)” can be watched
JUL172024
Past eventWednesday

Dr. Bedlack joined the amazing team at Compassionate Care ALS to participate in an event called “Aces for ALS” in Cape Cod MA

The event raised awareness and funds for an upcoming trial of Fecal Transplants at Duke. You can learn more about the event
JUN212024
Past eventFriday

On Global ALS/MND Awareness Day, Dr. Bedlack was in Iceland Presenting a talk on Hope In ALS

JUN122024
Past eventWednesday

Dr. Bedlack gave a lecture for NEALS entitled “Promising Alternative and Off Label Treatments for ALS.”

You can watch a recording of it for free
JUN92024
Past eventSunday

Dr. Bedlack gave a lecture for Compassionate Care ALS entitled “Hope in ALS: Things I’ve Learned and Want to Learn.”

You can watch a recording of it for free
JUN62024
Past eventThursday

We were pleased to be part of this new paper on Expanded Access Programs. We hope this will help guide others who are trying to launch these programs at their sites.

You can read it for free
JUN52024
Past eventWednesday

Duke team to celebrate 2024 Lou Gehrig Day with the Durham Bulls

 If you want to join us, here is a link to purchase tickets 

Learn more
MAY212024
Past eventTuesday

Dr. Bedlack co-authored a new publication updating the role of glutamate in ALS

You can read it
MAY152024
Past eventWednesday

Duke team quoted in USA Today about the progress being made in treating SOD1-ALS.

You can read the story
MAY22024
Past eventPodcastThursday

Dr. Bedlack interviewed for “Brain and Life” podcast, along with the amazing advocate and influencer Brooke Eby.

You can hear it
MAY22024
Past eventThursday

“ALS Reversals” Research featured on International Motor Neuron Disease Association Blog.

You can read it
APR262024
Past eventFriday

New ALSUntangled review on PONS device just publish

You can read it for free
APR222024
Past eventMonday

Racing For ALS again raises much needed funds for Duke ALS Reversals research program

Learn more
APR202024
Past eventSaturday

Duke ALS Clinic team members joined hundreds of people living with ALS at ALS United’s Hollywood-themed Triangle Walk in Raleigh, NC

This event has already raised over $280,000 to support ALS clinics across NC.

APR152024
Past eventMonday

Duke ALS researchers Dr. Li and Alexandra Linares presented abstracts at American Academy of Neurology Meeting in Denver, CO

MAR252024
Past eventMonday

Drs. Li and Bedlack just published an exciting new review of the ALS drug pipeline.

You can read it FREE HERE

Learn more
MAR42024
Past eventMonday

Duke team par of new publication describing insurance barriers to ALS treatments.

You can read it free
FEB292024
Past eventVideoThursday

In case you missed Dr. Bedlack’s recent Everything ALS webinar, updating his ALS Reversals research

You can watch it for free
FEB232024
Past eventFriday

Duke Team joined colleagues from across the state to report our progress in trying to understand why ALS appears more common in Eastern NC zip codes.

You can see details of the meeting
FEB62024
Past eventTuesday

You can read it free
JAN212024
Past eventSunday

“Ales for ALS” and “Hoops for ALS” events held in Durham NC today, raised awareness and much-needed funding for research!

JAN212024
Past eventSunday

Bedlack featured on “Let’s Talk MND podcast.

You can listen for free
JAN172024
Past eventWednesday

Go On Be Brave to be shown at Regal Cinemas nationwide!

If you have not already seen this amazing movie about Andrea Peet's quest to become the first person living with ALS to complete a marathon in all 50 states, now is your chance! A list of specific participating Regal Cinemas can be found

2023

DEC62023
Past eventWednesday

Duke ALS Team joins 1ooo colleagues from all over the world at the 34th International Symposium on ALS/MND in Basel Switzerland

Full details of the event can be found HERE. We presented our newest finding: the association between a polymorphism in IGFBP7 and ALS Reversals.  There is a plausible way that this could explain how some patients recover from ALS!  The next step in proving this is now underway.  While we were there, we had a chance to see some of Switzerland’s beauty 

Full details of the event can be found
NOV272023
Past eventMonday

“It’s Time To End ALS” fundraiser now underway

Just in time for the holidays, M.P. Demetre Jewelers in Charleston SC are selling a special collection of Tudor watches.  These have a gorgeous blue bezel and dial with several options for engraving on the back.  Proceeds will help fund our exciting work on the gut microbiome and how it might influence ALS progression.  More details can be found HERE and an order form can be found HERE

Just in time for the holidays, M.P. Demetre Jewelers in Charleston SC are selling a special collection of Tudor watches. These have a gorgeous blue bezel and dial with several options for engraving on the back. Proceeds will help fund our exciting work on the gut microbiome and how it might influence ALS progression. More details can be found
NOV132023
Past eventMonday

Duke ALS Clinic “Swings for the Cure”, helping to raise awareness and funding for the NC ALS Chapter

OCT52023
Past eventThursday

Duke ALS team had a busy week at the Northeast ALS Consortium Meeting

Dr. Bedlack led the 28th Clinical Research Learning Institute, training another 30 people living with ALS to be even more effective research advocates.  He then led a training session for his clinical colleagues who want to offer Expanded Access Programs.  Drs. Xiaoyan Li and Emilia Panzetta presented posters on their translational work, and Duke Medical Students Natalie Skigen and Raquel Perry presented their 3rd year clinical research projects.

OCT52023
Past eventThursday · 5:00 pm

Zac Brown Band in concert at Coastal Credit Union Music Park at Walnut Creek in Raleigh, benefiting the Duke ALS Clinic (yup, us!)

Their guitarist, John Driskell Hopkins, is living with ALS and is using his platform to advocate for the cause.  https://www.cbsnews.com/news/zac-brown-band-john-driskell-hopkins-als-diagnosis/.  Info about the concert and to purchase tickets:   https://zacbrownband.com/pages/tour-dates

Learn more
SEP162023
Past eventSaturday

Dr. Bedlack was up early with 1,000 runners to attend the Sola 5K. The event raised approximately $200,000 for ALS research and patient care. Later that day he was the keynote speaker for The Schoer Science Symposium at Valparaiso University

Learn more
SEP102023
Past eventSunday · 8:00 am

Duke ALS team part of new publication which outlines consensus guidelines for genetic testing in people with ALS

You can read it
AUG82023
Past eventTuesday

New ALSUntangled podcast on Astaxanthin just dropped

You can listen to this and many other podcasts we helped create
JUL262023
Past eventWednesday

New ALSUntangled review on Nuedexta just published

You can read it for free
JUN302023
Past eventFriday – Saturday

Duke team participates in Racing For ALS

This awesome event raises awareness and much-needed funds for ALS research.

Learn more
JUN302023
Past eventFriday

Duke team co-authors new review article called Intercellular Transmission of Pathogenic Proteins in ALS: Exploring the pathogenic wave

You can read it free
JUN172023
Past eventSaturday · 7:00 pm

Duke ALS team attended the local premiere of the fabulous movie Go On Be Brave. This is the story of the amazing Andrea Peet, the first person with ALS to complete a marathon in all 50 states

I

nfo can be found at https://goonbebravefilm.com/.  

Learn more
JUN122023
Past eventMonday

New CReATe Consortium “Author’s Series” Podcast on Neurofilaments now available.

You can listen for free
JUN82023
Past eventThursday

New ALSUntangled review on Caffeine now available.

You can download it for free
JUN22023
Past eventFriday

Dr. Bedlack celebrated Lou Gehrig Day with the Charleston River Dogs!

MAY302023
Past eventTuesday

Drs. Li and Bedlack just published the results of their positive trial of clenbuterol in people with ALS

You can read it
MAY182023
Past eventThursday · 6:30 pm

PBS Screening of the documentary Matter of Mind: My ALS, featuring the late Phil Freelon and his battle with ALS, followed by a discussion panel (including our very own Dr. Bedlack!).

The event will take place at the NorthStar Church of the Arts in Durham.  Please make sure that anyone who plans to attend RSVPs, as there are limited seats.  Admission is free and open to the public.   https://www.eventbrite.com/e/pbs-nc-screening-discussionmatter-of-mind-my-als-tickets-598647128677 

Learn more
MAY152023
Past eventMonday

Bedlack part of a group-authored publication validating a new patient-reported outcome for ALS Research called ALS Health Index

Learn more
MAY42023
Past eventThursday

Duke Celebrates New Endowed Professors, Included Dr. Bedlack

Learn more
APR242023
Past eventMonday

Dr. Bedlack gave multiple talks at the American Academy of Neurology Meeting in Boston this week

APR222023
Past eventVideoSaturday

‘Go On, Be Brave’

Documentary Profiling Andrea Lytle Peet To Premiere At RiverRun International Film Festival on April 22, 2023 at 1:30pm. Details and tickets can be found
APR32023
Past eventPodcastMonday

New ALSUntangled podcast on corticosteroids just released.

You can listen free
APR32023
Past eventMonday

Dr. Bedlack selected to be Duke’s first “Stewart, Hughes and Wendt Endowed Professor of ALS.” This new award will ensure that he is able to focus full time on ending ALS.

MAR152023
Past eventWednesday

Dr. Li recognized by journal for having one of the most downloaded articles of 2022

MAR22023
Past eventThursday

New ALSUntangled Podcast on Butyrate just released

You can listen free
FEB82023
Past eventVideoWednesday

Dr. Plews-Ogan and Dr. Bedlack presented a talk entitled “Sharing The Language of ALS” for UVA Medical Center Hour.

You can watch it for free
FEB62023
Past eventMonday

NEW ALSUntangled Podcast on Methylcobalamin just released

You can listen to it free
FEB12023
Past eventWednesday

Duke team part of new review on the combination of sodium phenylbutyrate and taurursodiol in the treatment of ALS

You can read it free
JAN252023
Past eventWednesday

New ALSUntangled review on Astaxanthin now available

free download
JAN182023
Past eventWednesday

In case you missed it, here is a link to Dr. Bedlack’s recent webinar on Vitamins and Supplements for People Living with ALS

Learn more

2022

DEC272022
Past eventTuesday

Duke team publishes new paper establishing a basis for spinal fluid filtration as part of future ALS treatment.

You can read it free
DEC192022
Past eventMonday

Dr. Li presented a fascinating update on her “Role of Inflammation in ALS Progression” project at Duke’s “Research in Progress” series.

You can learn more about this series
DEC132022
Past eventTuesday

Duke ALS team was part of a recent paper studying the patient-reported impact of symptoms in ALS.

You can read it for free
DEC62022
Past eventTuesday

Dr. Bedlack receives International Forbes Norris Award

You can read about it
NOV232022
Past eventVideoWednesday

Dr. Bedlack presented a talk for Everything ALS entitled “ALS Reversals: An Update for 2022.”

You can watch it free
NOV202022
Past eventSunday

Duke team meets with Albemarle Sound community to review plans to study ALS cluster, possibly related to algae blooms

NOV182022
Past eventFriday

New ALSUntangled review on Ozone just published.

You can read it for free HERE 

Learn more
NOV162022
Past eventWednesday

Duke announces first-ever Endowed Professorship in ALS

Learn more
NOV12–192022
Past eventSaturday – Saturday

New Virtual Clinical Research Learning Institutes in Australia, Canada empower 50 more people living with ALS to be Research Ambassadors.

You can read about these programs
NOV42022
Past eventFriday

2022 Clearwater ALS Clinical Research Learning Institute empowers 30 new Research Ambassadors to be even more effective partners.

You can read more about this program and the amazing accomplishments of ALS Research Ambassadors
NOV32022
Past eventThursday

ALSUntangled wins 2022 Gupta Prize for Innovation in Patient Care.

You can read the story
NOV22022
Past eventWednesday

Duke team presents results of Theracurmin trial at NEALS meeting.

You can read our abstract along with many others
OCT172022
Past eventMonday

Duke team co-authors state of the art review on ALS trials, clinical endpoints and biomarkers.

You can read it
OCT122022
Past eventVideoWednesday

Dr. Bedlack presented a short talk called “Untangling the ALS X-Files” at the Duke Forever Learning Institute’s “Fortifying the Brain” program.

You can watch the whole program
OCT82022
Past eventSaturday

Dr. Bedlack presented a talked called “Optimizing Access to Experimental Treatments for People with ALS” at the 2022 Help & Hope Symposium in Orlando Florida.

SEP302022
Past eventFriday

Dr. Bedlack presented a talk at Brainweek entitled A Shifting Paradigm:

SEP232022
Past eventFriday

Bedlack receives AANEM Public Recognition Award for his efforts to increase awareness of a nerve or muscle disease (ALS).

You can learn more about the unusual suit he wore for this occasion
SEP172022
Past eventSaturday

Sola 5K raised over $100,000 for ALS Research!

Thanks to all the sponsors and families who came out and supported this event.

SEP152022
Past eventThursday

New ALSUntangled review on Rituximab was just published.

You can read it
SEP122022
Past eventMonday

New Medscape Program we helped facitliate entitled “The Spectrum of Weakness in ALS

A Look into the Future is now available
SEP72022
Past eventVideoWednesday

Today is the day! Patients, families, doctors and researchers including Dr. Bedlack will testify to the FDA in support of approval for the drug AMX0035.

You can listen in
SEP62022
Past eventPodcastTuesday

New CReATe Author Series Podcast just dropped.

This one discusses the recent paper titled “Urinary neopterin: A novel biomarker of disease progression in amyotrophic lateral sclerosis". You can listen to this and several other podcasts designed to try to make research more understandable for non-scientists
AUG302022
Past eventTuesday

New collaborative study involving Duke and GenieUS finds marker that appears to protect against ALS.

You can read the paper here 

AUG292022
Past eventMonday

New ALSUntangled review on steroids just published

You can read it free
AUG222022
Past eventMonday

Applications now being sought for patients and families who want to attend a virtual Clinical Research Learning Institute and become Research Ambassadors.

AUG222022
Past eventMonday

New Grant from ALS Association will facilitate our ALSUntangled Program

AUG92022
Past eventTuesday

Bedlack wins AANEM Public Recognition Award

Richard S. Bedlack Jr., MD. PhD, MS, Honored With 2022 Public Recognition Award | American Association of Neuromuscular & Electrodiagnostic Medicine – aanem.org

AUG22022
Past eventTuesday

First Tuesday means we are Fashionably Fighting ALS

This month we celebrate SNEAKERS

AUG12022
Past eventMonday

New ALSUntangled review just published

This one is on Anti-Mycobacterial Antibiotics.  You can read it here

JUL52022
Past eventTuesday

New Paper

Out team just published a new study examining environmental exposures that might play a role in ALS reversals.  You can read this for free here https://www.tandfonline.com/doi/epub/10.1080/21678421.2022.2090846?needAccess=true

Out team just published a new study examining environmental exposures that might play a role in ALS reversals. You can read this for free
JUL22022
Past eventSaturday

Racing for ALS

Dr. B was thrilled to join people living with ALS at the Virginia International Raceway for Racing For ALS.  This fun event raised over $40,000 which will be used for ALS Reversals research at Duke

JUN212022
Past eventTuesday

Today is ALS Awareness Day

How will you honor it?  Our team will be in clinic, providing options and hope to our patients.  Dr. B will be wearing his special “Fashionably Fighting ALS” suit.

JUN202022
Past eventMonday

Applications are now available for the next ALS Clinical Research Learning Institute!

This program empowers patients and families to be even more effective research partners and advocates.  You can learn more about the program and apply here https://www.neals.org/for-people-with-als-caregivers/clinical-research-learning-institute-crli

JUN14–162022
Past eventTuesday – Thursday

The Duke ALS team will participate in National ALS Advocacy days again this year.

JUN132022
Past eventPodcastMonday

New ALSUntangled podcast just dropped, this one on Vitamin C

You can listen to this and many other ALSUntangled podcasts here https://www1.rarediseasesnetwork.org/cms/create/CReATe-Podcasts

Listen to the episode
JUN22022
Past eventThursday

The Duke ALS Clinic is looking forward to spending “Lou Gehrig Day” with the Durham Bulls again this year.

JUN12022
Past eventWednesday

Thanks to all who participated in our “50 Fashions” Contest during ALS Awareness Month.

MAY282022
Past eventSaturday

Bedlack was thrilled to accompany Team Drea (https://www.teamdrea.org) to Alaska.

Together they saw amazing sites, spoke at schools and a community center about ALS, and cheered the inspiring Andrea Peet across the finish line as she became the first person living with ALS to complete a marathon in all the 50 states 

MAY19–202022
Past eventThursday – Friday

Dr. Bedlack will be speaking at the ALS Association Greater New York Chapter – Education and Resource Summit. His talk will be “Untangling the ALS X-Files.”

You can register for this event here https://whova.com/portal/registration/aagny_202205

MAY152022
Past eventSunday

Dr. Bedlack will be speaking for Compassionate Care ALS on the topic “Reasons for Hope After An ALS Diagnosis.”

You can sign up to watch here:
 https://us02web.zoom.us/meeting/register/tZMsdO2rrD0sE9HcQP32HKgA4hjQKVTdnNCr

MAY13–142022
Past eventFriday – Saturday

Next Virtual Clinical Research Learning Institute (CRLI) will occur on May 13 and 14th

Anyone interested in attending should email a short paragraph on why they want to be “Research Ambassador” to jamey@alshopefoundation.org

MAY1–312022
Past eventSunday – Tuesday

50 Fashions For Fighting ALS

Building on this amazing 50 for 50 Challenge and to kick off ALS Awareness Month, the Duke ALS Clinic is hosting a photo contest called “50 Fashions For Fighting ALS.”  You can review 50 of Dr. Bedlack’s outfits and vote for the one you like best here. The top 4 vote-getters will be worn by Dr. Bedlack during his ALS Clinics in June.  Voting is free, but if you want to donate to our exciting ALS research program, you can do so here.

Building on this amazing 50 for 50 Challenge and to kick off ALS Awareness Month, the Duke ALS Clinic is hosting a photo contest called “50 Fashions For Fighting ALS.” You can review 50 of Dr. Bedlack’s outfits and vote for the one you like best
APR232022
Past eventSaturday

The Duke ALS Clinic team enjoyed seeing so many friends in person again at the Triangle Walk To Defeat ALS this year

APR232022
Past eventSaturday · 8:00 am

The Duke ALS Team will again be participating in the Triangle Walk to Defeat ALS.

Hope to see you there 
https://secure2.convio.net/alsa/site/TR/Walks/NorthCarolina?pg=entry&fr_id=14915

Your participation in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. Through education, support groups, access to care and advocacy, we are working to defeat ALS and provide hope to people living with ALS and their families.

APR82022
Past eventFriday

Dr. Bedlack will present a webinar entitled “Virtual Trials: Optimizing Access, Diversity and Efficiency”.

The NEALS Consortium will be hosting a series of virtual Investigator-focused workshops throughout the spring of 2022. The “Trials of the Future: What COVID Made Us Learn” series will include topics such as trial design adaptations, experiences in current remote trials, home measures, and the state of fluid biomarkers.

April 8th, 2022 12:30pm – 1:30pm ET
Virtual Trials: Optimizing Access, Diversity and Efficiency
Moderator: James Berry
Speaker: Rick Bedlack Dr. Rick Bedlack will present on his experience running remote clinical trials, including highlighting their benefits and their limitations, and showing where he thinks these are best utilized.

You can register to listen to it here https://register.gotowebinar.com/register/8782489186610849296

APR52022
Past eventTuesday

First Tuesday of the month means our team is dressing in a theme. We call this “Fashionably Fighting ALS.”

Today we celebrated the 50th Anniversary of punk rock in America

Today we celebrated the 50th Anniversary of punk rock in America

APR12022
Past eventPodcastFriday

New ALSUntangled podcast just dropped, this one on Light Therapy.

You can listen to this and many ALSUntangled podcasts here https://www1.rarediseasesnetwork.org/cms/create/CReATe-Podcasts

Listen to the episode
MAR302022
Past eventWednesday

Dr. Bedlack will testify to the FDA in support of AMX0035

Learn more
MAR282022
Past eventMonday

Bedlack quoted in support of AMX0035 in new Biospace article.

From left: Amylyx Co-founders and Co-CEOs Justin Klee and Josh Cohen/Courtesy Amylyx . The FDA’s Peripheral and Central Nervous System Drugs Advisory Committee will face its first big test since the regulator went against its vote on Biogen’s Aduhelm (aducanumab), approving the still-controversial Alzheimer’s drug in June 2021. On Wednesday, the Committee will vote on Amylyx …

Read the full article
MAR172022
Past eventThursday

“May your troubles be less and your blessings be more, And nothing but happiness come through your door.”

Learn more
MAR32022
Past eventThursday

In partnership with our colleagues in the CReATe Consortium, we posted a new ALSUntangled podcast on Ketogenic Diets.

You can listen to this and many other ALSUntangled podcasts here:

Learn more
MAR1–22022
Past eventTuesday – Wednesday

Dr. Bedlack joined a large group of clinicians and people living with ALS in an Action Summit convened by IAMALS. The purpose was to discuss ways we can all work together to streamline and improve ALS Clinical Research.

You can read more about this here:

 https://iamals.org/action/als-action-summit/

Learn more
FEB282022
Past eventMonday

Our ALSUntangled team published its latest review, this one on Butyrates.

You can find it here:

 https://www.tandfonline.com/doi/abs/10.1080/21678421.2022.2045323?journalCode=iafd20

FEB162022
Past eventWednesday

Dr. Bedlack was part of a panel of experts, convened by Icon to review ways to optimize Diversity and Inclusion in clinical research.

You can view the discussion here:

 https://app.wipster.io/Review/CefFOgB-giARQiOb3GKXYFaPvsd6DXu8NaipaPFfYo-gz3aEMA

FEB102022
Past eventThursday

Mansour and Bedlack interviewed about the interaction between ALS and sleep disorders on Sleep is a Skill podcast.

You can listen here:

Learn more
FEB12022
Past eventTuesday

“Fashionably Fighting ALS.”

Today we celebrated the Lunar New Year, which is The Year of the Tiger

JAN302022
Past eventSunday

Our team was part of a new publication which described the results of a clinical trial of NP001.

You can read it here:

https://pubmed.ncbi.nlm.nih.gov/35098554/https://pubmed.ncbi.nlm.nih.gov/35098554/

JAN172022
Past eventMonday

Dr. Bedlack’s views on a new Edaravone study were quoted on Medscape and ALZForum

You can read it here:

https://www.medscape.com/viewarticle/966717#vp_1

https://www.alzforum.org/papers/safety-and-effectiveness-long-term-intravenous-administration-edaravone-treatment-patients#comment-43841

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