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ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
Recent and Upcoming Events
July 10, 2026
Duke team will attend “Hope Never Goes Out of Style” event in Indianapolis Indiana.
Details in attached flyer
May 14, 2026
To commemorate ALS Awareness Month, Dr. Bedlack’s is posting daily on Instagram showing 1 hopeful thing, wearing 1 outfit that brings him joy.
You can follow along on Instagram @stitchingstrength
May 9, 2026
“Stitching Strength” was screened in Asheville NC
May 5, 2026
“Stitching Strength” was screened in Washington DC at IAMALS Community Gathering and Awareness Event.
April 25, 2026
Dr. Bedlack spoke about Hope and screened “Stitching Strength” in Bonn Germany.
Details and QR code for registration in attached poster.
April 18, 2026
Dr. Bedlack presented his findings on ALS Outliers at ALS Family Day in Belgium.
Details HERE
