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ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
Recent and Upcoming Events
May 2022
50 Fashions For Fighting ALS
Building on this amazing 50 for 50 Challenge and to kick off ALS Awareness Month, the Duke ALS Clinic is hosting a photo contest called “50 Fashions For Fighting ALS.” You can review 50 of Dr. Bedlack’s outfits and vote for the one you like best here. The top 4 vote-getters will be worn by Dr. Bedlack during his ALS Clinics in June. Voting is free, but if you want to donate to our exciting ALS research program, you can do so here.
May 19-20, 2022
Dr. Bedlack will be speaking at the ALS Association Greater New York Chapter – Education and Resource Summit. His talk will be “Untangling the ALS X-Files.”
You can register for this event here
https://whova.com/portal/registration/aagny_202205
May 13 & 14, 2022
Next Virtual Clinical Research Learning Institute (CRLI)
CRLI programs can empower people living with ALS to have a greater role in research, as described here:
https://www.tandfonline.com/doi/full/10.1080/21678421.2019.1690519
Anyone interested in attending should email a short paragraph on why they want to be “Research Ambassador” to jamey@alshopefoundation.org
