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ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
ALS IS A TOUGH DISEASE. IT CALLS FOR AN ORGANIZED AGGRESSIVE APPROACH. WE START BY CONFIRMING THE DIAGNOSIS AND EXCLUDING ALS MIMICS. IF ALS IS CONFIRMED WE USE THE LATEST DISEASE-MODIFYING THERAPIES TO SLOW PROGRESSION. OUR MULTI-DISCIPLINARY TEAM IDENTIFIES SPECIFIC SYMPTOMS AND PROBLEMS AND PROVIDES A WIDE RANGE OF OPTIONS FOR DEALING WITH THEM. WE ARE ALWAYS ON THE LOOKOUT FOR NEW THERAPIES IN OUR ACTIVE RESEARCH PROGRAM. ALL OF US HERE ARE ENTHUSIASTIC AND HOPEFUL!
Recent and Upcoming Events
November 27, 2023
“It’s Time To End ALS” fundraiser now underway.
Just in time for the holidays, M.P. Demetre Jewelers in Charleston SC are selling a special collection of Tudor watches. These have a gorgeous blue bezel and dial with several options for engraving on the back. Proceeds will help fund our exciting work on the gut microbiome and how it might influence ALS progression. More details can be found HERE and an order form can be found HERE
November 13, 2023
Duke ALS Clinic “Swings for the Cure”, helping to raise awareness and funding for the NC ALS Chapter
October 5, 2023
Duke ALS team had a busy week at the Northeast ALS Consortium Meeting.
Dr. Bedlack led the 28th Clinical Research Learning Institute, training another 30 people living with ALS to be even more effective research advocates. He then led a training session for his clinical colleagues who want to offer Expanded Access Programs. Drs. Xiaoyan Li and Emilia Panzetta presented posters on their translational work, and Duke Medical Students Natalie Skigen and Raquel Perry presented their 3rd year clinical research projects.
October 5, 2023 at 5:00 pm
Zac Brown Band in concert at Coastal Credit Union Music Park at Walnut Creek in Raleigh, benefiting the Duke ALS Clinic (yup, us!).
Their guitarist, John Driskell Hopkins, is living with ALS and is using his platform to advocate for the cause. https://www.cbsnews.com/news/zac-brown-band-john-driskell-hopkins-als-diagnosis/. Info about the concert and to purchase tickets: https://zacbrownband.com/pages/tour-dates
September 16, 2023
Dr. Bedlack was up early with 1,000 runners to attend the Sola 5K. The event raised approximately $200,000 for ALS research and patient care. Later that day he was the keynote speaker for The Schoer Science Symposium at Valparaiso University
