You can read more about this here:  https://iamals.org/action/als-action-summit/

Listen to "ALS Untangled Series: Ep. 45 - Ketogenic Diets" on Spreaker. You can listen to this and many other ALSUntangled podcasts here:

From left: Amylyx Co-founders and Co-CEOs Justin Klee and Josh Cohen/Courtesy Amylyx . The FDA’s Peripheral and Central Nervous System Drugs Advisory Committee will face its first big test since the regulator went against its vote on Biogen’s Aduhelm (aducanumab), approving the still-controversial Alzheimer’s drug in June 2021. On Wednesday, the Committee will vote on […]

You can listen to this and many ALSUntangled podcasts here https://www1.rarediseasesnetwork.org/cms/create/CReATe-Podcasts

Today we celebrated the 50th Anniversary of punk rock in America Today we celebrated the 50th Anniversary of punk rock in America

The NEALS Consortium will be hosting a series of virtual Investigator-focused workshops throughout the spring of 2022. The “Trials of the Future: What COVID Made Us Learn” series will include topics such as trial design adaptations, experiences in current remote trials, home measures, and the state of fluid biomarkers. April 8th, 2022 12:30pm – 1:30pm […]

The Duke ALS Clinic team enjoyed seeing so many friends in person again at the Triangle Walk To Defeat ALS this year 

Hope to see you there https://secure2.convio.net/alsa/site/TR/Walks/NorthCarolina?pg=entry&fr_id=14915 Your participation in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. Through education, support groups, access to care and advocacy, we are working to defeat ALS and provide hope to people living with ALS and their families.

Building on this amazing 50 for 50 Challenge and to kick off ALS Awareness Month, the Duke ALS Clinic is hosting a photo contest called “50 Fashions For Fighting ALS.”  You can […]

Next Virtual Clinical Research Learning Institute (CRLI) will occur on these dates.  CRLI programs can empower people living with ALS to have a greater role in research, as described here https://www.tandfonline.com/doi/full/10.1080/21678421.2019.1690519 Anyone interested in attending should email a short paragraph on why they want to be "Research Ambassador" to jamey@alshopefoundation.org