Next Virtual Clinical Research Learning Institute (CRLI) will occur on these dates.  CRLI programs can empower people living with ALS to have a greater role in research, as described here https://www.tandfonline.com/doi/full/10.1080/21678421.2019.1690519 Anyone interested in attending should email a short paragraph on why they want to be "Research Ambassador" to jamey@alshopefoundation.org

You can sign up to watch here: https://us02web.zoom.us/meeting/register/tZMsdO2rrD0sE9HcQP32HKgA4hjQKVTdnNCr

You can register for this event here https://whova.com/portal/registration/aagny_202205

Together they saw amazing sites, spoke at schools and a community center about ALS, and cheered the inspiring Andrea Peet across the finish line as she became the first person living with ALS to complete a marathon in all the 50 states 

Thanks to all who participated in our "50 Fashions" Contest during ALS Awareness Month.  Here are the 4 winning outfits which Dr. Bedlack will be wearing to clinics in June.

The Duke ALS Clinic is looking forward to spending "Lou Gehrig Day" with the Durham Bulls again this year.  Hope to see you all there!

You can listen to this and many other ALSUntangled podcasts here https://www1.rarediseasesnetwork.org/cms/create/CReATe-Podcasts

The Duke ALS team will participate in National ALS Advocacy days again this year.  You can learn more about this event and register here https://www.als.org/stories-news/join-us-2022-virtual-advocacy-conference

This program empowers patients and families to be even more effective research partners and advocates.  You can learn more about the program and apply here https://www.neals.org/for-people-with-als-caregivers/clinical-research-learning-institute-crli

Today is ALS Awareness Day How will you honor it?  Our team will be in clinic, providing options and hope to our patients.  Dr. B will be wearing his special "Fashionably Fighting ALS" suit.

Dr. B was thrilled to join people living with ALS at the Virginia International Raceway for Racing For ALS.  This fun event raised over $40,000 which will be used for ALS Reversals research at Duke

Out team just published a new study examining environmental exposures that might play a role in ALS reversals.  You can read this for free here https://www.tandfonline.com/doi/epub/10.1080/21678421.2022.2090846?needAccess=true Out team just published a new study examining environmental exposures that might play a role in ALS reversals.  You can read this for free here