We were pleased to be part of this new paper on Expanded Access Programs. We hope this will help guide others who are trying to launch these programs at their sites. June 6, 2024
Dr. Bedlack gave a lecture for Compassionate Care ALS entitled “Hope in ALS: Things I’ve Learned and Want to Learn.” June 9, 2024
Dr. Bedlack gave a lecture for NEALS entitled “Promising Alternative and Off Label Treatments for ALS.” June 12, 2024
On Global ALS/MND Awareness Day, Dr. Bedlack was in Iceland Presenting a talk on Hope In ALS June 21, 2024
Dr. Bedlack joined the amazing team at Compassionate Care ALS to participate in an event called “Aces for ALS” in Cape Cod MA July 17, 2024
Duke team publishes first-ever potential explanation for ALS Reversals: mutation in a gene that controls a protein called IGFBP7. July 30, 2024
Dr. Bedlack receives inaugural “Accelerating Miracle Progress” Award from Hop On A Cure August 13, 2024
We had a blast participating in Hop On A Cure’s Harmony for Hope in Atlanta Georgia. September 14, 2024
We are grateful to have partnered with the Packard Center at Johns Hopkins to host the 31st ALS Clinical Research Learning Institute. September 20, 2024
